You may have heard that the Obama administration has proposed new rules for federal funding of embryonic stem cell (ESC) research. (The proposed rules are available in draft form through the end of the public comment period; the NIH expects to finalize the rules in July).
While researchers are enthusiastic at the prospect under this administration of more funding for ESC research, not everyone is happy about the details of the proposed rules. Indeed, in a recent article in Cell Stem Cell [1], Patrick L. Taylor argues that there is something fundamentally misguided about the way the new rules would be applied to old research:
Category Archives: Current events
Fake medical journals.
John Lynch and Dr. Isis have already posted on the revelation that Elsevier published something, Australasian Journal of Bone and Joint Medicine, that looked and sounded like it was a medical journal but that turned out to have been fancy advertising for pharmaceuticals company Merck.
The Scientist has the details:
A warning for the herpeto-unctuous.
It seems that some people respond to public concern about swine flu and its spread by trying to sell you stuff. This stuff is not limited to face masks and duct tape, but includes products advertised to prevent, diagnose, or treat swine flu, but whose claims of safety and efficacy do not have a basis in evidence.
In other words, snake oil.
Flu pandemic ethics: rationing scarce resources.
In an earlier post, I pointed you toward the preliminary report (PDF here) issued by the Minnesota Pandemic Ethics Project this January. This report sets out a plan for the state of Minnesota to ration vital resources in the event of a severe influenza pandemic.
Now, a rationing plan devised by an ethics project is striving for fairness. Rationed resources are those scarce enough that there isn’t enough to go around to everyone who might want or need them. If someone will be left out, what’s a fair way to decide who?
Let’s have a look at the rationing strategies discussed in the draft report:
Ethics in planning for a flu pandemic.
In my last post, I looked at some of the ethical considerations an individual might make during a flu epidemic. My focus was squarely on the individual’s decisions: whether to stay in bed or seek medical care, whether to seek aid from others, etc. This is the kind of everyday ethics that crops up for most of us as we try to get through our days.
If you’re someone who is responsible for keeping health care infrastructure or other state resources in good working order, however, the ethical landscape of a major flu epidemic looks quite different.
Swine flu outbreaks and the ethics of being sick.
Like a lot of other people, I’m watching the swine flu outbreaks unfold with some interest. As they do, I can’t help but think about the ethical dimensions of our interactions with other humans, since it’s looking like any of us could become a vector of disease.
There are some fairly easy ethical calls here — for example, if you’re sick and can avoid spreading your germs, you should avoid spreading them. But there are some other questions whose answers are not as clear.
Swine flu and air travel.
Probably you’ve been reading about the new swine flu outbreak on Effect Measure and Aetiology. At this stage, public health officials are keeping careful watch on this epidemic to try to keep it from becoming a pandemic.
And this is the news in the back of my mind as I need to arrange air travel in the coming months. Nothing makes me want to book airline tickets more than the project of being in a metal tube with germy humans.
I did some poking around to see what kinds of measures the airlines might be taking to avoid helping spread swine flu and the people carrying it around.
Morality, outrage, and #amazonfail: a reply to Clay Shirky.
A bunch of people (including Bora) have pointed me to Clay Shirky’s take on #amazonfail. While I’m not in agreement with Shirky’s analysis that Twitter users mobilized an angry mob on the basis of a false theory (and now that mob is having a hard time backing down), there are some interesting ideas in his post that I think merit consideration. So, let’s consider them.
Some thoughts on #Amazonfail.
Those of you on Twitter yesterday probably noticed the explosion of tweets with the hashtag #amazonfail. For those who were otherwise occupied carving up chocolate bunnies or whatnot, the news spread to the blogs, Facebook, and the traditional media outlets. The short version is that on Easter Sunday, a critical mass of people noticed that many, many books that Amazon sells had their Amazon sales rank stripped, and that these books stopped coming up in searches on Amazon that were not searches on the book titles (or, presumably, authors).
What fanned the flames of the frenzy were certain consistencies in what kind of book was getting deranked. Many were books with LGBT subject matter. Some were classic books (like Lady Chatterly’s Lover) or more recent titles with what might be classified as adult themes. Some were books about disability and sexuality. A partial list of the deranked titles can be found here.
The effect of the derankings angered lots of people, indignant that a search on “homosexuality” on the behemoth etailer’s website brought up as top results guidebooks to curing your child’s homosexuality but omitted titles aimed at helping prevent suicide in gay teens. The question to which people wanted an answer was whether these changes reflected concerted policy on Amazon’s part, and whether the problem (as seen by the angry Twitterfolk) was going to be addressed.
As I write this post, the response from Amazon has been anemic to non-existent. The news outlets are reporting that Amazon blames a “glitch” for the derankings. Publisher Weekly reports:
A glimpse into how not to conduct an ethical drug trial.
The Independent reports that drug giant Pfizer has agreed to pay a $75 million settlement nine years after Nigerian parents whose children died in a drug trial brought legal action against the company.
It’s the details of that drug trial that are of interest here: